A Christmas "Thank You" to Marcus' Grandma, Caregiver and our Answered Prayer
Below is my mom's (Jan) Christmas Letter to all our friends and family
Dec. 16, 2016
I apologize that I am not able to send out our
annual Christmas "up-to-date letter" on Marcus. Although I love this
time of year, I found it to be difficult to write a letter this year. Marci has
been keeping you all semi up-to-date on our doctors’ appointments and
such. She also sends out the "funny" videos. We also try
to record some of the tough and exhausting outbursts to send to his doctors,
but aren't quite ready to send them all to you, as his language is not exactly
rated G.
First and foremost, I want you all to know that
we SO appreciate all the great comments and responses to Marci's updates.
It really does encourage us. Some days are great, some days are good, and
some are just plain bad.
Words cannot begin to explain how amazing of an
answer to our prayers that my mom, Marion, has been. In spite of, this
year, her losing 3 siblings and her husband of 53 1/2 years, she is the best
caregiver we could have ever asked for. Besides that fact that she truly
loves Marcus, she does a great job in "negotiating" when he seems to
be nonnegotiable. Once again, I say that Gary and I aren't good at the
negotiating, defusing, etc. Grandma has the touch. She says that
Marcus gives her purpose, and I am glad for this, because I still, at times,
wonder why I question God's plan.
Mom and Marcus have an evening ritual of playing
Phase Ten (card game), Karroms, learning the state capitals, and their own
version of a spelling bee. I love that she takes time to do that.
When he is at home with us, he always asks me why I can't be "nice"
like grandma. I try to explain to him that I need to stay a little mean
so that he will want to go to grandmas.
So, I just want to personally say, "I love
you mom, for loving Marcus so much, even though there are times when his
actions are so hard to love. You truly are an answer to prayer.”
I hope you all have a very Merry Christmas and
Happy New Year!
Love, The McGillivray’s
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